Families- Jonah

Jonah receives 24 hour care from his parents, Hayley and Ben. He attends a special school in Cardiff and despite being nearly six years old, cannot walk or talk. He doesn’t eat and so his parents had to make the difficult decision to have a gastrostomy tube fitted. This means that milk and medications are inserted through a tube directly into his stomach.

Jonah has been fortunate in that his school are of the opinion that each child should be treated for their individual needs- not the label that they have. Something that Hayley believes should be adopted by other services.

In the clip below, Hayley describes how Ty Gwyn has been instrumental in Jonah’s care, and the Head Teacher, Kevin Tansley, describes his experiences of working with parents with undiagnosed children: