SWAN UK
SWAN UK, or Syndromes Without a Name is a vital link between families with children who have undiagnosed genetic conditions. The project provides support and information for the families, bringing them together in a community that listens, shares advice and brings together ideas.
If you have a child with an undiagnosed condition, or would like to support SWAN in their work to raise awareness, please use the contact details below.
Syndromes Without a Name
Website:
www.undiagnosed.org.uk
Email:
SWAN@geneticalliance.org.uk
Telephone:
0207 704 3141
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