Blog Archives

Could you cope? – Undiagnosed Childrens Awareness Day 2013

Could you cope?

Could you mother a child with a syndrome- no name
Deal with the stares, and live feeling strange
Your child is ill and there’s no reason why-
The doctors can’t help him, they just nod and sigh.

There’s too many people who cope day and night
Through tears and anger, inconsolable fright.
Who don’t have one reason for what could be wrong
Will their development change, will the fits last so long?

Today is your chance to help those in need.
Wear pink and wear blue- it’s April 13th.
Help raise some awareness and highlight the pain
Of 1300 people who have a Syndrome Without A Name.

logo for Undiagnosed Children's Awareness Day

VIDEO: Could you cope? – Undiagnosed Children’s Awareness Day 2013

Without a Diagnosis featured on BritMums Special Needs Roundup

If you haven’t seen it yet, the BritMums SEN Roundup is a must-read for parents of children with Special Needs. These posts bring together blogs and websites most relevant to you- a chance to pick up tips, or just raise a smile from reading the adventures of other families just like yours.

Without a Diagnosis was recently featured in the round up! Click on the screengrab to take you to October’s SEN Roundup!

Keith Addison’s Review

Another amazing review of Without a Diagnosis from a SWAN parent’s perspective.

Please visit Keith’s Blog to read what he has to say about the project!

(PS; Thank you, Keith 🙂 )